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Dates
CME Training “Pneumo Live” – Rare Diseases: Lungs 2025
Rare diseases of the lung are the focus of a live webinar in the PneumoLive series on the STREAMED UP training platform on Thursday, December 11, 2025 from 6:00 to…
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Dates
CME Training “Paediatrics Live” – Rare Haematological Diseases in Paediatrics
Rare haematological diseases in paediatrics are the focus of a live webinar in the PaediatricsLive series on the training platform STREAMED UP on Monday, December 15, 2025, from 6:00 to…
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Dates
Transition in Rare Diseases: Smooth Entry into Adult Medicine
Save the date: The live talk on October 13, 2025, will take place from 6:00 to 7:30 p.m. as an interactive live webinar on the STREAMED UP video platform. On…
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Dates
Red Flag Webinar: Diagnostics of Neuronal Ceroid Lipofuscinoses
Neuronal ceroid lipofuscinoses (NCL) are the most common types of neurodegenerative diseases in childhood and adolescence. NCL specialist Dr. med. Angela Schulz from UKE Hamburg-Eppendorf provides an overview of the…
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Dates
Tagesspiegel Health Forum: Women with Rare Diseases
Event notice: The Tagesspiegel Health Forum invites you to the event Women with Rare Diseases under the title "Double hurdle? When rarity and gender impact care," on Wednesday, September 24,…
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Dates
CME Training: “Treatment of Genetic Forms of Diabetes and Obesity”
What specific approaches currently exist for treating genetic forms of diabetes and obesity? How can genetic diagnoses such as cystic fibrosis or MODY influence therapy selection? What therapeutic options are…
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Dates
Precision medicine offers new perspectives for people living with rare diseases. But how can it be implemented wisely and sustainably for the future? This was the central question explored at…
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Dates
9th Rare Disease Symposium – Session 1: Case Study Neuronale Ceroid-Lipofuszinose (NCL)
The opening session of the 9th Rare Disease Symposium on June 20, 2025, focused on Neuronal Ceroid Lipofuscinosis (NCL), a rare neurodegenerative disorder of childhood that exemplifies both the opportunities…
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Dates
9th Rare Disease Symposium – Session 2: Unlocking the Power of Data in Rare Diseases
Precision medicine relies on data — but not at any cost. The second session of the 9th Rare Disease Symposium on June 20, 2025, focused on the responsible use of…
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Dates
The third session of the 9th Rare Disease Symposium on June 20, 2025, focused on the scientific and technological foundations of precision medicine from diagnostic methods to innovative therapeutic approaches.
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Dates
To conclude the 9th Rare Disease Symposium on June 20, 2025, Prof. Dr. Claudia Bozzaro (University of Münster) turned the focus to the ethical foundations of precision medicine posing a…
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Dates
CME Training: “Rare Diseases and Orthopaedics”
X-linked hypophosphatemia, hypophosphatasia, and osteogenesis imperfecta—three rare diseases—will be the focus of a live webinar in the OrthoTrauma Live series on the STREAMED UP education platform on Tuesday, July 10,…