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Dates
20 Years of Commitment to People with Rare Diseases
Since being officially recognized on March 21, 2006, the Eva Luise and Horst Köhler Foundation has been dedicated to people with rare diseases. A visit to Bellevue Palace with Elke…
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Dates
Zebra Participation Events colourUp4RARE
On International Rare Disease Day, the colourUp4RARE initiative draws attention to the situation of millions affected with nationwide zebra activities. Join in and show your visible support.
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Dates
Register now: 10th Rare Disease Symposium on April 17, 2026
On Friday, April 17, 2026, the Eva Luise and Horst Köhler Foundation will host its 10th Rare Disease Symposium in Berlin under the title “Breaking Boundaries: Uniting People, Knowledge and…
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Dates
Save the Date: 10th Rare Disease Symposium & 18th Eva Luise Köhler Research Award Ceremony
On Friday, April 17, 2026, we warmly invite you to the 10th Rare Disease Symposium and the 18th Eva Luise Köhler Research Award Ceremony for Rare Diseases in Berlin. Please…
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Dates
CME Training “Pneumo Live” – Rare Diseases: Lungs 2025
Rare diseases of the lung are the focus of a live webinar in the PneumoLive series on the STREAMED UP training platform on Thursday, December 11, 2025 from 6:00 to…
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Dates
CME Training “Paediatrics Live” – Rare Haematological Diseases in Paediatrics
Rare haematological diseases in paediatrics are the focus of a live webinar in the PaediatricsLive series on the training platform STREAMED UP on Monday, December 15, 2025, from 6:00 to…
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Dates
Transition in Rare Diseases: Smooth Entry into Adult Medicine
Save the date: The live talk on October 13, 2025, will take place from 6:00 to 7:30 p.m. as an interactive live webinar on the STREAMED UP video platform. On…
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Dates
Red Flag Webinar: Diagnostics of Neuronal Ceroid Lipofuscinoses
Neuronal ceroid lipofuscinoses (NCL) are the most common types of neurodegenerative diseases in childhood and adolescence. NCL specialist Dr. med. Angela Schulz from UKE Hamburg-Eppendorf provides an overview of the…
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Dates
Tagesspiegel Health Forum: Women with Rare Diseases
Event notice: The Tagesspiegel Health Forum invites you to the event Women with Rare Diseases under the title "Double hurdle? When rarity and gender impact care," on Wednesday, September 24,…
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Dates
CME Training: “Treatment of Genetic Forms of Diabetes and Obesity”
What specific approaches currently exist for treating genetic forms of diabetes and obesity? How can genetic diagnoses such as cystic fibrosis or MODY influence therapy selection? What therapeutic options are…
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Dates
Precision medicine offers new perspectives for people living with rare diseases. But how can it be implemented wisely and sustainably for the future? This was the central question explored at…
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Dates
9th Rare Disease Symposium – Session 1: Case Study Neuronale Ceroid-Lipofuszinose (NCL)
The opening session of the 9th Rare Disease Symposium on June 20, 2025, focused on Neuronal Ceroid Lipofuscinosis (NCL), a rare neurodegenerative disorder of childhood that exemplifies both the opportunities…