Category: Dates
- Filter byAll
- Filter byA4R – Alliance4Rare
- Filter byDates
- Filter byDonations
- Filter byEvents
- Filter byFilm portraits
- Filter byInformation & Opinion
- Filter byMedical Trainings
- Filter byOn our on behalf
- Filter byResearch
- Filter byTenders
-
Dates
9th Rare Disease Symposium – Session 2: Unlocking the Power of Data in Rare Diseases
Precision medicine relies on data — but not at any cost. The second session of the 9th Rare Disease Symposium on June 20, 2025, focused on the responsible use of…
-
Dates
The third session of the 9th Rare Disease Symposium on June 20, 2025, focused on the scientific and technological foundations of precision medicine from diagnostic methods to innovative therapeutic approaches.
-
Dates
To conclude the 9th Rare Disease Symposium on June 20, 2025, Prof. Dr. Claudia Bozzaro (University of Münster) turned the focus to the ethical foundations of precision medicine posing a…
-
Dates
CME Training: “Rare Diseases and Orthopaedics”
X-linked hypophosphatemia, hypophosphatasia, and osteogenesis imperfecta—three rare diseases—will be the focus of a live webinar in the OrthoTrauma Live series on the STREAMED UP education platform on Tuesday, July 10,…
-
Dates
New CME Training Series “Rare Diseases in Practice”
On Rare Disease Day, February 28, 2025, our live and interactive training series for outpatient physicians will begin. The topic of the kick-off webinar from 6:00 to 7:30 PM: “When…
-
Dates
9th Rare Disease Symposium on 20 June 2025: Precision Medicine for Rare Diseases
On Friday, 20 June 2025, the 9th Rare Disease Symposium of the Eva Luise and Horst Köhler Foundation will take place in Berlin. The focus will be on precision medicine…
-
Dates
Achieving more together: Women’s Network for Rare Diseases
On 9 January 2025, a group of committed women came together at the Berlin Institute of Health @ Charité (BIH) to officially launch the Women in Rare Diseases network -…
-
Dates
Register now: Rare Diseases Run 2025 – the virtual charity run enters a new round
Run around the rarest day of the year for rare diseases - that's what the Rare Diseases Run invites you to do, starting for the fourth time in 2025. What…
-
Dates
“We don’t have a problem of knowledge, we have a problem of implementation!”
This clear call was the focus of Prof. Dr. Annette Grüters-Kieslich's presentation at the event "Pendulum - Patient-Centricity and Future-Oriented Care for Rare Diseases" on November 26 in Berlin. The…
-
Dates
New approaches in medicine: Foundation forum on cell and gene therapies for rare diseases
On 1 October 2024, the first joint foundation forum of the Berlin Sparkassenstiftung Medizin and the Eva Luise and Horst Köhler Foundation took place in the historic Max-Liebermann-Haus in Berlin.
-
Dates
Register now: Political expert discussion “Rare diseases in the German Bundestag”
With a professional impulse from Prof. Dr. Annette Grüters-Kieslich, a political expert discussion on the topic of rare diseases will take place on Thursday, October 10, 2024 from 4:30 to…
-
Dates
Making Commitment Visible: Eva Luise Köhler at the Rare Diseases Bavaria Midsummer Reception
At the summer reception of the “Rare Diseases Bavaria” campaign, Eva Luise Köhler appealed for solidarity with people with rare diseases. Her plea and the presentation of the campaign's white…