Research on Rare Diseases
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Our Projects
Find out more about our projects and learn how your support helps us make a difference.
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The Alliance4Rare
The research initiative for children with rare diseases – together for a healthier future.
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Targeted Support for Young Researchers
The Clinician Scientist 4 Rare scholarships – empowering more research in rare diseases.
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Research Award
The Eva Luise Köhler Research Award promotes research innovation in rare diseases.
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Rare Disease Symposia
Our annual Rare Disease Symposia enhance knowledge sharing and vital networking among stakeholders.
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NARSE Register
Learn more about the National Register for Rare Diseases (NARSE).
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Think Tank
Our Think Tank improves care and research for rare diseases.
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Our Network
Our rare disease network: initiatives making a difference for rare conditions.