Rare Disease Symposiums
Close, interdisciplinary collaboration between clinicians, researchers, patients and industry is essential to accelerate research into the causes of rare diseases and the development of therapies. Our Rare Disease Symposiums promote the transfer of knowledge and active networking between the key players.
Our previous Rare Disease Symposiums
-
8. Rare Disease Symposium
Rethinking Rare
3./4. May 2024
-
7. Rare Disease Symposium
Recognise and treat at an early stage: The role of prevention in rare diseases
9./10. June 2023
-
6. Rare Disease Symposium
Translational medicine for rare diseases – from buzzword to reality
13./14. June 2022
-
5. Rare Disease Symposium
Digitalization – opportunity or risk for the rare?
27./ 28. February 2020
-
4. Rare Disease Symposium
Centers and networks – how do you design suitable structures for care?
26./ 27. February 2019
-
3. Rare Disease Symposium
New therapies – high hopes & unanswered questions
20. February 2018
-
2. Rare Disease Symposium
The common path to therapy
1. March 2017
-
1. RARE DISEASE SYMPOSIUM
International Rare Disease Symposium
3./4. March 2016
The latest news on rare diseases
-
Dates
Precision medicine offers new perspectives for people living with rare diseases. But how can it be implemented wisely and sustainably for the future? This was the central question explored at…
-
Dates
9. Rare Disease Symposium – Session 1: Case Study Neuronale Ceroid-Lipofuszinose (NCL)
The opening session of the 9th Rare Disease Symposium on June 20, 2025, focused on Neuronal Ceroid Lipofuscinosis (NCL), a rare neurodegenerative disorder of childhood that exemplifies both the opportunities…
-
Dates
9th Rare Disease Symposium – Session 2: Unlocking the Power of Data in Rare Diseases
Precision medicine relies on data — but not at any cost. The second session of the 9th Rare Disease Symposium on June 20, 2025, focused on the responsible use of…
Help the orphans of medicine!
ELHKS uses your donations in a targeted manner – so that medical progress reaches everyone.
Newsletter Subscription
Our free newsletter informs you about current calls for proposals, events and projects concerning rare diseases.
The newsletter is currently only available in German.