Rare Disease Symposiums
Close, interdisciplinary collaboration between clinicians, researchers, patients and industry is essential to accelerate research into the causes of rare diseases and the development of therapies. Our Rare Disease Symposiums promote the transfer of knowledge and active networking between the key players.
Our previous Rare Disease Symposiums
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9. Rare Disease Symposium
Precision Medicine for Rare
20. June 2025
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8. Rare Disease Symposium
Rethinking Rare
3./4. May 2024
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7. Rare Disease Symposium
Recognise and treat at an early stage: The role of prevention in rare diseases
9./10. June 2023
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6. Rare Disease Symposium
Translational medicine for rare diseases – from buzzword to reality
13./14. June 2022
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5. Rare Disease Symposium
Digitalization – opportunity or risk for the rare?
27./ 28. February 2020
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4. Rare Disease Symposium
Centers and networks – how do you design suitable structures for care?
26./ 27. February 2019
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3. Rare Disease Symposium
New therapies – high hopes & unanswered questions
20. February 2018
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2. Rare Disease Symposium
The common path to therapy
1. March 2017
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1. RARE DISEASE SYMPOSIUM
International Rare Disease Symposium
3./4. March 2016
The latest news on rare diseases
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On our on behalf
Hope grows when we act together – Reflections at year’s end
The year 2025 moved and united us. We had to say goodbye but also saw how much hope arises when people support each other. In our Christmas letter, we look…
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Events
Needs-based care for women with rare diseases: Parliamentary breakfast sets impulses
Women with rare diseases often face a double burden: health and structural. At the Parliamentary Breakfast by Gilead Sciences, experts from politics, science, healthcare, and self-help—including our Chair of the…
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Information & Opinion
“The best time to plant a tree was twenty years ago. The second best time is now.”
Twenty years ago, Horst Köhler spoke about responsibility, courage, and the opportunity to actively shape the future. His thoughts are more relevant today than ever. A reminder that offers guidance—especially…
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Newsletter Subscription
Our free newsletter informs you about current calls for proposals, events and projects concerning rare diseases.
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