Rare Disease Symposiums
Close, interdisciplinary collaboration between clinicians, researchers, patients and industry is essential to accelerate research into the causes of rare diseases and the development of therapies. Our Rare Disease Symposiums promote the transfer of knowledge and active networking between the key players.
Our previous Rare Disease Symposiums
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9. Rare Disease Symposium
Precision Medicine for Rare
20. June 2025
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8. Rare Disease Symposium
Rethinking Rare
3./4. May 2024
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7. Rare Disease Symposium
Recognise and treat at an early stage: The role of prevention in rare diseases
9./10. June 2023
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6. Rare Disease Symposium
Translational medicine for rare diseases – from buzzword to reality
13./14. June 2022
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5. Rare Disease Symposium
Digitalization – opportunity or risk for the rare?
27./ 28. February 2020
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4. Rare Disease Symposium
Centers and networks – how do you design suitable structures for care?
26./ 27. February 2019
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3. Rare Disease Symposium
New therapies – high hopes & unanswered questions
20. February 2018
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2. Rare Disease Symposium
The common path to therapy
1. March 2017
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1. RARE DISEASE SYMPOSIUM
International Rare Disease Symposium
3./4. March 2016
The latest news on rare diseases
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A4R – Alliance4Rare
Biliary atresia: How do children live with this rare liver disease, and what is Alliance4Rare researching? Author Berit Hullmann, chairwoman of Leberkrankes Kind e.V., met with families and researchers. She…
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Events
Foundation Forum Gene and Cell Therapies: How Can Tomorrow’s Medicine Remain Affordable?
Gene and cell therapies open up new perspectives for people with rare diseases. But how can we achieve fair, sustainable care for everyone? This was the central topic of the…
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Information & Opinion
Rare Diseases: Pioneers of Future Medicine
In the magazine "Future Medicine," our Chair Prof. Dr. Annette Grüters-Kieslich explains how research, networking, and targeted support in the field of rare diseases advance medicine as a whole –…
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Newsletter Subscription
Our free newsletter informs you about current calls for proposals, events and projects concerning rare diseases.
The newsletter is currently only available in German.