Rare Disease Symposiums
Close, interdisciplinary collaboration between clinicians, researchers, patients and industry is essential to accelerate research into the causes of rare diseases and the development of therapies. Our Rare Disease Symposiums promote the transfer of knowledge and active networking between the key players.
Our previous Rare Disease Symposiums
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9. Rare Disease Symposium
Precision Medicine for Rare
20. June 2025
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8. Rare Disease Symposium
Rethinking Rare
3./4. May 2024
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7. Rare Disease Symposium
Recognise and treat at an early stage: The role of prevention in rare diseases
9./10. June 2023
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6. Rare Disease Symposium
Translational medicine for rare diseases – from buzzword to reality
13./14. June 2022
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5. Rare Disease Symposium
Digitalization – opportunity or risk for the rare?
27./ 28. February 2020
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4. Rare Disease Symposium
Centers and networks – how do you design suitable structures for care?
26./ 27. February 2019
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3. Rare Disease Symposium
New therapies – high hopes & unanswered questions
20. February 2018
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2. Rare Disease Symposium
The common path to therapy
1. March 2017
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1. RARE DISEASE SYMPOSIUM
International Rare Disease Symposium
3./4. March 2016
The latest news on rare diseases
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Events
Breaking Boundaries Together: Review of the 10th Rare Disease Symposium
Under the motto “Breaking Boundaries: Uniting People, Knowledge and Systems in Rare Diseases,” the 10th Rare Disease Symposium of the Eva Luise and Horst Köhler Foundation brought together international experts…
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Events
10th Rare Disease Symposium – Session 1: Case Study Rare Obesity
The first session of the Rare Disease Symposium on April 17, 2026, used the case study of genetic obesity to vividly show how closely personal experiences, biological mechanisms, and therapeutic…
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Events
10th Rare Disease Symposium – Session 2: Collaboration Beyond Borders
The second session of the Rare Disease Symposium on April 17, 2026, focused on how international collaboration and structured data use can advance the diagnosis and research of rare diseases.
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