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– so that medical progress reaches everyone
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The Eva Luise and Horst Köhler Foundation
Building the future together
Rare diseases primarily affect the most vulnerable in our society. Every year, at least 1,500 children die from a rare disease in Germany alone. However, it is only the clinical picture that is rare: in Germany alone, at least 4 million people are affected by a rare disease. Due to a lack of research, there is a lack of effective treatment approaches and medication.
The Eva Luise and Horst Köhler Foundation wants to change this through targeted research funding, networking, and public relations work. We promote research into rare diseases and make targeted investments in the structures required to achieve these goals. As the initiator of the Alliance4Rare research initiative, we are shaping a future model for pediatric research in Germany together with partners from research and civil society. With your help, we are making the ‘medicine of tomorrow’ a reality and ensuring that medical progress reaches everyone!
Did you know, that...
... experts estimate that there are up to 10,000 rare diseases?
The Foundation
About us
Since 2006, the people behind the Eva Luise and Horst Köhler Foundation have been deeply committed to improving medical care for children, young people and adults with rare diseases.
Research
How we help
Research and patient care must go hand in hand when it comes to rare diseases. We invest in the necessary structures, networks and projects so that those affected can be helped as quickly as possible.
Rare diseases
Why we help
Rare are plenty. Our efforts give people with rare diseases hope for a healthier future and ultimately benefit everyone. After all, research into rare diseases can also revolutionize the “medicine of tomorrow”.
Donations
How you can help
People suffering from insufficiently researched diseases need help quickly. We are taking action. Support us with your donation in our research offensive for rare diseases!
Latest News
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Veranstaltung
At the invitation of Erich Irlstorfer, Member of the German Parliament, Prof Dr Annette Grüters-Kieslich and Geske Wehr (ACHSE e.V.) joined numerous interested guests in the German Bundestag to advocate…
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Information & Opinion
White Paper ‘Rare Diseases Bavaria’ – A step into the future
On 7 October, the White Paper of the 'Bavaria for Rare Diseases' campaign was presented to the public at a press conference. Under the patronage of the Eva Luise and…
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Events
New approaches in medicine: Foundation forum on cell and gene therapies for rare diseases
On 1 October 2024, the first joint foundation forum of the Berlin Sparkassenstiftung Medizin and the Eva Luise and Horst Köhler Foundation took place in the historic Max-Liebermann-Haus in Berlin.
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Information & Opinion
A call for the preservation of human dignity – a stand against eugenic visions!
Statement of the Eva Luise and Horst Köhler Foundation for People with Rare Diseases on the Editorial of the Chairman of the KV Saxony Dr. Klaus Heckemann in the Bulletin…
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Alliance4Rare
Two years Alliance4Rare: pioneering work for research into rare diseases
Research gives hope to the youngest: At the two-year anniversary of the Alliance4Rare research initiative, scientific director Prof. Dr. Annette Grüters-Kieslich reports on the successes, challenges and goals of the…
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Events
The 8th Rare Disease Symposium of the Eva Luise and Horst Köhler Foundation focused on thinking ahead and thinking outside the box. Around 150 participants accepted the invitation to Berlin…
Help the orphans of medicine!
ELHKS uses your donations in a targeted manner – so that medical progress reaches everyone.
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