Rare Disease Symposiums
Close, interdisciplinary collaboration between clinicians, researchers, patients and industry is essential to accelerate research into the causes of rare diseases and the development of therapies. Our Rare Disease Symposiums promote the transfer of knowledge and active networking between the key players.
Our previous Rare Disease Symposiums
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8. Rare Disease Symposium
Rethinking Rare
3./4. May 2024
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7. Rare Disease Symposium
Recognise and treat at an early stage: The role of prevention in rare diseases
9./10. June 2023
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6. Rare Disease Symposium
Translational medicine for rare diseases – from buzzword to reality
13./14. June 2022
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5. Rare Disease Symposium
Digitalization – opportunity or risk for the rare?
27./ 28. February 2020
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4. Rare Disease Symposium
Centers and networks – how do you design suitable structures for care?
26./ 27. February 2019
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3. Rare Disease Symposium
New therapies – high hopes & unanswered questions
20. February 2018
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2. Rare Disease Symposium
The common path to therapy
1. March 2017
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1. RARE DISEASE SYMPOSIUM
International Rare Disease Symposium
3./4. March 2016
The latest news on rare diseases
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Information & Opinion
Key demands for improving care for people with rare diseases
Concerned about the future of care for people with rare diseases, several position papers on the situation of rare disease patients in the German healthcare system have been produced in…
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Events
Award ceremony for the 17th Eva Luise Köhler Research Award
On Friday, 20 June 2025, the Eva Luise Köhler Research Award for Rare Diseases will be presented for the 17th time in Berlin. With this award, we honour researchers whose…
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Wissen & Meinung
On the occasion of the International Day of Rare Diseases on 28 February 2025, the German Federal Government Commissioner for Patients' Affairs, Stefan Schwartze, MdB, and the Eva Luise and…
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Newsletter Subscription
Our free newsletter informs you about current calls for proposals, events and projects concerning rare diseases.
The newsletter is currently only available in German.