Rare Disease Symposiums
Close, interdisciplinary collaboration between clinicians, researchers, patients and industry is essential to accelerate research into the causes of rare diseases and the development of therapies. Our Rare Disease Symposiums promote the transfer of knowledge and active networking between the key players.
Our previous Rare Disease Symposiums
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7. Rare Disease Symposium
Recognise and treat at an early stage: The role of prevention in rare diseases
9./10. June 2023
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6. Rare Disease Symposium
Translational medicine for rare diseases – from buzzword to reality
13./14. June 2022
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5. Rare Disease Symposium
Digitalization – opportunity or risk for the rare?
27./ 28. February 2020
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4. Rare Disease Symposium
Centers and networks – how do you design suitable structures for care?
26./ 27. February 2019
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3. Rare Disease Symposium
New therapies – high hopes & unanswered questions
20. February 2018
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The latest news on rare diseases
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Events
Save the date: Rare Disease Symposium and Ceremony of the Eva Luise Köhler Research Award 2025
On Friday, June 20, 2025, the 9th Rare Disease Symposium of the Eva Luise and Horst Köhler Foundation will take place in Berlin. The focus will be on precision medicine…
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Information & Opinion
Our new activity report is out
Find out how we are working to increase research and improve care for people living with rare diseases through funding projects, events and initiatives.
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Events
“We don’t have a problem of knowledge, we have a problem of implementation!”
This clear call was the focus of Prof. Dr. Annette Grüters-Kieslich's presentation at the event "Pendulum - Patient-Centricity and Future-Oriented Care for Rare Diseases" on November 26 in Berlin. The…
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Newsletter Subscription
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