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Events
Making Commitment Visible: Eva Luise Köhler at the Rare Diseases Bavaria Midsummer Reception
At the summer reception of the “Rare Diseases Bavaria” campaign, Eva Luise Köhler appealed for solidarity with people with rare diseases. Her plea and the presentation of the campaign's white…
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Alliance4Rare
Alliance4Rare call for proposals: Junior Clinician Scientists for Rare (JCS4Rare)
The Alliance4Rare offers Junior Clinician Scientists for Rare (JCS4Rare) a structured specialist training program that enables prospective pediatricians and human geneticists with a clearly recognizable scientific interest in rare diseases…
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Alliance4Rare
Two years Alliance4Rare: pioneering work for research into rare diseases
Research gives hope to the youngest: At the two-year anniversary of the Alliance4Rare research initiative, scientific director Prof. Dr. Annette Grüters-Kieslich reports on the successes, challenges and goals of the…
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Alliance4Rare
Junior Clinician Scientist: Dr. Nina Wilpert, Charité – Universitätsmedizin Berlin
The Alliance4Rare research network not only invests in research programs, but also in urgently needed young scientists through clinician/medical scientist programs. Read more about Dr. Nina-Maria Wilpert, Charité - Universitätsmedizin…
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Alliance4Rare
Junior Clinician Scientist: Dr. Ruth Maria Urbantat, Charité – Universitätsmedizin Berlin
The Alliance4Rare research network not only invests in research programs, but also in urgently needed young scientists through clinician/medical scientist programs. Read more about Dr. Ruth Maria Urbantat/ Charité -…
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Events
The 8th Rare Disease Symposium of the Eva Luise and Horst Köhler Foundation focused on thinking ahead and thinking outside the box. Around 150 participants accepted the invitation to Berlin…
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Events
The 8th Rare Disease Symposium of the Eva Luise and Horst Köhler Foundation focused on thinking ahead and thinking outside the box. Around 150 participants accepted the invitation to Berlin…
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Tenders
Call for applications for the 17th Eva Luise Köhler Research Award for Rare Diseases
In order to improve medical care for the "orphans of medicine", the Eva Luise and Horst Köhler Foundation, in cooperation with ACHSE e. V., has been awarding a research award…
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Information & Opinion
“It is about terrible fates” – An interview with Eva Luise Köhler and Prof. Dr. Corinna Grasemann
Rare diseases are not as rare as the term suggests. Four million Germans suffer from them, many of them children. In an interview with the Frankfurter Allgemeine Sonntagszeitung, Eva Luise…
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Research
In a festive award ceremony, Eva Luise Köhler honored Prof. Dr. Alessandro Prigione/ University Hospital Düsseldorf and Prof. Dr. Markus Schülke/ Charité - Universitätsmedizin with the 16th Eva Luise Köhler…
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Tenders
Alliance4Rare call for proposals: Funding for research projects on rare diseases
The Alliance4Rare - Research Initiative for Children with Rare Diseases is once again inviting proposals for up to three research projects with a maximum duration of 3 years and a…
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Alliance4Rare
Medical Scientist: Dr. Lorenz Chua, Berlin Institute of Health @ Charité (BIH)
The Alliance4Rare research network not only invests in research programs, but also in urgently needed young scientists through clinician/medical scientist programs. Read more about Lorenz Chua/ Berlin Institute of Health…