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Veranstaltung
At the invitation of Erich Irlstorfer, Member of the German Parliament, Prof Dr Annette Grüters-Kieslich and Geske Wehr (ACHSE e.V.) joined numerous interested guests in the German Bundestag to advocate…
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Events
New approaches in medicine: Foundation forum on cell and gene therapies for rare diseases
On 1 October 2024, the first joint foundation forum of the Berlin Sparkassenstiftung Medizin and the Eva Luise and Horst Köhler Foundation took place in the historic Max-Liebermann-Haus in Berlin.
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Information & Opinion
White Paper ‘Rare Diseases Bavaria’ – A step into the future
On 7 October, the White Paper of the 'Bavaria for Rare Diseases' campaign was presented to the public at a press conference. Under the patronage of the Eva Luise and…
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Events
Register now: Political expert discussion “Rare diseases in the German Bundestag”
With a professional impulse from Prof. Dr. Annette Grüters-Kieslich, a political expert discussion on the topic of rare diseases will take place on Thursday, October 10, 2024 from 4:30 to…
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Research
Stopping rapid ageing? Hope for children with a rare genetic defect
The Eva Luise Köhler Research Award has been presented annually since 2008 to promote research into rare diseases. The award money of €50,000 has already enabled more than a dozen…
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Information & Opinion
A call for the preservation of human dignity – a stand against eugenic visions!
Statement of the Eva Luise and Horst Köhler Foundation for People with Rare Diseases on the Editorial of the Chairman of the KV Saxony Dr. Klaus Heckemann in the Bulletin…
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Alliance4Rare
Clinician Scientist: Dr. Steffen Köhne, Universitätsmedizin Göttingen
The Alliance4Rare research network not only invests in research programs, but also in urgently needed young scientists through clinician/medical scientist programs. Read more about Dr. Nina-Maria Wilpert, Charité - Universitätsmedizin…
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Events
Making Commitment Visible: Eva Luise Köhler at the Rare Diseases Bavaria Midsummer Reception
At the summer reception of the “Rare Diseases Bavaria” campaign, Eva Luise Köhler appealed for solidarity with people with rare diseases. Her plea and the presentation of the campaign's white…
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Alliance4Rare
Alliance4Rare call for proposals: Junior Clinician Scientists for Rare (JCS4Rare)
The Alliance4Rare offers Junior Clinician Scientists for Rare (JCS4Rare) a structured specialist training program that enables prospective pediatricians and human geneticists with a clearly recognizable scientific interest in rare diseases…
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Alliance4Rare
Two years Alliance4Rare: pioneering work for research into rare diseases
Research gives hope to the youngest: At the two-year anniversary of the Alliance4Rare research initiative, scientific director Prof. Dr. Annette Grüters-Kieslich reports on the successes, challenges and goals of the…
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Alliance4Rare
Junior Clinician Scientist: Dr. Nina Wilpert, Charité – Universitätsmedizin Berlin
The Alliance4Rare research network not only invests in research programs, but also in urgently needed young scientists through clinician/medical scientist programs. Read more about Dr. Nina-Maria Wilpert, Charité - Universitätsmedizin…
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Alliance4Rare
Junior Clinician Scientist: Dr. Ruth Maria Urbantat, Charité – Universitätsmedizin Berlin
The Alliance4Rare research network not only invests in research programs, but also in urgently needed young scientists through clinician/medical scientist programs. Read more about Dr. Ruth Maria Urbantat/ Charité -…