Category: Veranstaltung
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Events
Register now: Rare Diseases Run 2025 – the virtual charity run enters a new round
Run around the rarest day of the year for rare diseases - that's what the Rare Diseases Run invites you to do, starting for the fourth time in 2025. What…
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Events
“We don’t have a problem of knowledge, we have a problem of implementation!”
This clear call was the focus of Prof. Dr. Annette Grüters-Kieslich's presentation at the event "Pendulum - Patient-Centricity and Future-Oriented Care for Rare Diseases" on November 26 in Berlin. The…
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Veranstaltung
Roundtable: Why the EU pharmaceutical package is crucial for rare diseases
At the virtual roundtable organised by the Change4Rare initiative, Annette Grüters-Kieslich took a clear stance: "The needs of the more than 30 million people with rare and ultra-rare diseases must…
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Veranstaltung
At the invitation of Erich Irlstorfer, Member of the German Parliament, Prof Dr Annette Grüters-Kieslich and Geske Wehr (ACHSE e.V.) joined numerous interested guests in the German Bundestag to advocate…
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Events
The 8th Rare Disease Symposium of the Eva Luise and Horst Köhler Foundation focused on thinking ahead and thinking outside the box. Around 150 participants accepted the invitation to Berlin…