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Information & Opinion
Our new activity report is out
Find out how we are working to increase research and improve care for people living with rare diseases through funding projects, events and initiatives.
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Information & Opinion
Rare diseases affect millions of people in Germany and their families - an enormous challenge for our healthcare system. At the same time, technological advances in diagnostics, therapies and digitalization…
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Information & Opinion
White Paper ‘Rare Diseases Bavaria’ – A step into the future
On 7 October, the White Paper of the 'Bavaria for Rare Diseases' campaign was presented to the public at a press conference. Under the patronage of the Eva Luise and…
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Information & Opinion
A call for the preservation of human dignity – a stand against eugenic visions!
Statement of the Eva Luise and Horst Köhler Foundation for People with Rare Diseases on the Editorial of the Chairman of the KV Saxony Dr. Klaus Heckemann in the Bulletin…
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Information & Opinion
“It is about terrible fates” – An interview with Eva Luise Köhler and Prof. Dr. Corinna Grasemann
Rare diseases are not as rare as the term suggests. Four million Germans suffer from them, many of them children. In an interview with the Frankfurter Allgemeine Sonntagszeitung, Eva Luise…