Category: Wissen & Meinung
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Wissen & Meinung
In Germany, four million people live with a rare disease — enough to fill the largest football stadium in Dortmund 50 times. However, unlike in football, those living with rare…
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Information & Opinion
Key demands for improving care for people with rare diseases
Concerned about the future of care for people with rare diseases, several position papers on the situation of rare disease patients in the German healthcare system have been produced in…
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Wissen & Meinung
On the occasion of the International Day of Rare Diseases on 28 February 2025, the German Federal Government Commissioner for Patients' Affairs, Stefan Schwartze, MdB, and the Eva Luise and…
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Information & Opinion
Our new activity report is out
Find out how we are working to increase research and improve care for people living with rare diseases through funding projects, events and initiatives.
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Information & Opinion
Rare diseases affect millions of people in Germany and their families - an enormous challenge for our healthcare system. At the same time, technological advances in diagnostics, therapies and digitalization…
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Information & Opinion
A call for the preservation of human dignity – a stand against eugenic visions!
Statement of the Eva Luise and Horst Köhler Foundation for People with Rare Diseases on the Editorial of the Chairman of the KV Saxony Dr. Klaus Heckemann in the Bulletin…
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Information & Opinion
“It is about terrible fates” – An interview with Eva Luise Köhler and Prof. Dr. Corinna Grasemann
Rare diseases are not as rare as the term suggests. Four million Germans suffer from them, many of them children. In an interview with the Frankfurter Allgemeine Sonntagszeitung, Eva Luise…