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Events
9th Rare Disease Symposium on 20 June 2025: Precision Medicine for Rare Diseases
On Friday, 20 June 2025, the 9th Rare Disease Symposium of the Eva Luise and Horst Köhler Foundation will take place in Berlin. The focus will be on precision medicine…
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Events
Achieving more together: Women’s Network for Rare Diseases
On 9 January 2025, a group of committed women came together at the Berlin Institute of Health @ Charité (BIH) to officially launch the Women in Rare Diseases network -…
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Events
Register now: Rare Diseases Run 2025 – the virtual charity run enters a new round
Run around the rarest day of the year for rare diseases - that's what the Rare Diseases Run invites you to do, starting for the fourth time in 2025. What…
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Events
“We don’t have a problem of knowledge, we have a problem of implementation!”
This clear call was the focus of Prof. Dr. Annette Grüters-Kieslich's presentation at the event "Pendulum - Patient-Centricity and Future-Oriented Care for Rare Diseases" on November 26 in Berlin. The…
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Events
New approaches in medicine: Foundation forum on cell and gene therapies for rare diseases
On 1 October 2024, the first joint foundation forum of the Berlin Sparkassenstiftung Medizin and the Eva Luise and Horst Köhler Foundation took place in the historic Max-Liebermann-Haus in Berlin.
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Events
Register now: Political expert discussion “Rare diseases in the German Bundestag”
With a professional impulse from Prof. Dr. Annette Grüters-Kieslich, a political expert discussion on the topic of rare diseases will take place on Thursday, October 10, 2024 from 4:30 to…
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Events
Making Commitment Visible: Eva Luise Köhler at the Rare Diseases Bavaria Midsummer Reception
At the summer reception of the “Rare Diseases Bavaria” campaign, Eva Luise Köhler appealed for solidarity with people with rare diseases. Her plea and the presentation of the campaign's white…
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Events
The 8th Rare Disease Symposium of the Eva Luise and Horst Köhler Foundation focused on thinking ahead and thinking outside the box. Around 150 participants accepted the invitation to Berlin…
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Events
The 8th Rare Disease Symposium of the Eva Luise and Horst Köhler Foundation focused on thinking ahead and thinking outside the box. Around 150 participants accepted the invitation to Berlin…
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Events
Presentation of the 16th Eva Luise Köhler Research Award for Rare Diseases
Eva Luise Köhler will award the Research Prize for Rare Diseases that bears her name on Friday, May 3, 2024 from 6 p.m. at the Berlin-Brandenburg Academy of Sciences and…