Rare Disease Symposiums
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Close, interdisciplinary collaboration between clinicians, researchers, patients and industry is essential to accelerate research into the causes of rare diseases and the development of therapies. Our Rare Disease Symposiums promote the transfer of knowledge and active networking between the key players.
Our previous Rare Disease Symposiums
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6. Rare Disease Symposium
Translational medicine for rare diseases – from buzzword to reality
13./14. June 2022
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5. Rare Disease Symposium
Digitalization – opportunity or risk for the rare?
27./ 28. February 2020
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4. Rare Disease Symposium
Centers and networks – how do you design suitable structures for care?
26./ 27. February 2019
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3. Rare Disease Symposium
New therapies – high hopes & unanswered questions
20. February 2018
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The latest news on rare diseases
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Information & Opinion
A call for the preservation of human dignity – a stand against eugenic visions!
Statement of the Eva Luise and Horst Köhler Foundation for People with Rare Diseases on the Editorial of the Chairman of the KV Saxony Dr. Klaus Heckemann in the Bulletin…
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Alliance4Rare
Clinician Scientist: Dr. Steffen Köhne, Universitätsmedizin Göttingen
The Alliance4Rare research network not only invests in research programs, but also in urgently needed young scientists through clinician/medical scientist programs. Read more about Dr. Nina-Maria Wilpert, Charité - Universitätsmedizin…
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Events
Making Commitment Visible: Eva Luise Köhler at the Rare Diseases Bavaria Midsummer Reception
At the summer reception of the “Rare Diseases Bavaria” campaign, Eva Luise Köhler appealed for solidarity with people with rare diseases. Her plea and the presentation of the campaign's white…
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