Your support enables us to promote research
– so that medical progress reaches everyone
Donate & get involved
– so that medical progress reaches everyone
Rare diseases primarily affect the most vulnerable in our society. Every year, at least 1,500 children die from a rare disease in Germany alone. However, it is only the clinical picture that is rare: in Germany alone, at least 4 million people are affected by a rare disease. Due to a lack of research, there is a lack of effective treatment approaches and medication.
The Eva Luise and Horst Köhler Foundation wants to change this through targeted research funding, networking, and public relations work. We promote research into rare diseases and make targeted investments in the structures required to achieve these goals. As the initiator of the Alliance4Rare research initiative, we are shaping a future model for pediatric research in Germany together with partners from research and civil society. With your help, we are making the ‘medicine of tomorrow’ a reality and ensuring that medical progress reaches everyone!
Did you know, that...
The Foundation
About us
Since 2006, the people behind the Eva Luise and Horst Köhler Foundation have been deeply committed to improving medical care for children, young people and adults with rare diseases.
Research
How we help
Research and patient care must go hand in hand when it comes to rare diseases. We invest in the necessary structures, networks and projects so that those affected can be helped as quickly as possible.
Rare diseases
Why we help
Rare are plenty. Our efforts give people with rare diseases hope for a healthier future and ultimately benefit everyone. After all, research into rare diseases can also revolutionize the “medicine of tomorrow”.
Donations
How you can help
People suffering from insufficiently researched diseases need help quickly. We are taking action. Support us with your donation in our research offensive for rare diseases!
Latest News
Alliance4Rare
Alliance4Rare call for proposals: Junior Clinician Scientists for Rare (JCS4Rare)
The Alliance4Rare offers Junior Clinician Scientists for Rare (JCS4Rare) a structured specialist training program that enables prospective pediatricians and human geneticists with a clearly recognizable scientific interest in rare diseases…
Tenders
Call for applications for the 17th Eva Luise Köhler Research Award for Rare Diseases
In order to improve medical care for the "orphans of medicine", the Eva Luise and Horst Köhler Foundation, in cooperation with ACHSE e. V., has been awarding a research award…
Information & Opinion
A call for the preservation of human dignity – a stand against eugenic visions!
Statement of the Eva Luise and Horst Köhler Foundation for People with Rare Diseases on the Editorial of the Chairman of the KV Saxony Dr. Klaus Heckemann in the Bulletin…
Alliance4Rare
Two years Alliance4Rare: pioneering work for research into rare diseases
Research gives hope to the youngest: At the two-year anniversary of the Alliance4Rare research initiative, scientific director Prof. Dr. Annette Grüters-Kieslich reports on the successes, challenges and goals of the…
Events
The 8th Rare Disease Symposium of the Eva Luise and Horst Köhler Foundation focused on thinking ahead and thinking outside the box. Around 150 participants accepted the invitation to Berlin…
Alliance4Rare
Clinician Scientist: Dr. Steffen Köhne, Universitätsmedizin Göttingen
The Alliance4Rare research network not only invests in research programs, but also in urgently needed young scientists through clinician/medical scientist programs. Read more about Dr. Nina-Maria Wilpert, Charité - Universitätsmedizin…
Help the orphans of medicine!
ELHKS uses your donations in a targeted manner – so that medical progress reaches everyone.
Our free newsletter informs you about current calls for proposals, events and projects concerning rare diseases.