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Your support enables us to promote research

– so that medical progress reaches everyone

andrea katheder, Berlin 2021
The Eva Luise and Horst Köhler Foundation

Rare diseases primarily affect the most vulnerable in our society. Every year, at least 1,500 children die from a rare disease in Germany alone. However, it is only the clinical picture that is rare: in Germany alone, at least 4 million people are affected by a rare disease. Due to a lack of research, there is a lack of effective treatment approaches and medication.

The Eva Luise and Horst Köhler Foundation wants to change this through targeted research funding, networking, and public relations work. We promote research into rare diseases and make targeted investments in the structures required to achieve these goals. As the initiator of the Alliance4Rare research initiative, we are shaping a future model for pediatric research in Germany together with partners from research and civil society. With your help, we are making the ‘medicine of tomorrow’ a reality and ensuring that medical progress reaches everyone!

Did you know, that...

... experts estimate that there are up to 10,000 rare diseases?

The Foundation

About us

Since 2006, the people behind the Eva Luise and Horst Köhler Foundation have been deeply committed to improving medical care for children, young people and adults with rare diseases.



How we help

Research and patient care must go hand in hand when it comes to rare diseases. We invest in the necessary structures, networks and projects so that those affected can be helped as quickly as possible.


Rare diseases

Why we help

Rare are plenty. Our efforts give people with rare diseases hope for a healthier future and ultimately benefit everyone. After all, research into rare diseases can also revolutionize the “medicine of tomorrow”.



How you can help

People suffering from insufficiently researched diseases need help quickly. We are taking action. Support us with your donation in our research offensive for rare diseases!


Without the funding from the Alliance4Rare, my research project would not be possible in everyday university life.

— Dr. Felix Boschann, „Clinician Scientists for Rare“ participant

I would like to see more attention paid to researching and treating rare diseases, with the aim of giving those affected a chance for a better life.

— Dr. h. c. mult. Friede Springer, Friede Springer Stiftung

I had just started a position at the largest children’s hospital in Switzerland. I came back to Berlin for the opportunity to combine excellent research and patient care.

— Dr. Leonie Schumm, „Clinician Scientists for Rare" participant

Herzenswünsche e.V. supports the Alliance4Rare because hope for more effective therapies is probably the greatest wish of all for many families with seriously ill children.

— Wera Röttgering, Founder Herzenswünsche e. V.

Everyone deserves a chance to live a normal and happy life. By supporting the Alliance4Rare, researchers like me can hope to give patients with rare diseases a better future.

— Dr. Lorenz Chua, Medical Scientist for Rare

We are committed to promoting highly trained pediatricians through targeted support for young talent – they are the future of medicine and hope for many families in Berlin and around the world.

— Ines Fasting, Berliner Sparkassenstiftung Medizin

Alliance4Rare offers me the unique opportunity to devote time to patients with rare diseases alongside my specialist work in order to speed up diagnosis.

— Dr. Nina Christine Knopf, „Clinician Scientists 4 Rare“ participant

It is impossible to ignore the fate of the orphans of medicine. Especially not when you realize how much can and must still be achieved through research.

— Daniel Wichmann, Wirtgen Stiftungen

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ELHKS uses your donations in a targeted manner – so that medical progress reaches everyone.


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